Hockey on pause in Weyburn after minor ammonia leak
12m ago
Crescent Point Place and Tom Zandee Sports Arena will remain closed for repairs.
When Darian Durant learned of this story he wanted to help.
Addison and Emma are only six months old yet they are already facing an enormous struggle.
The Saskatoon twins have been diagnosed with Spinal Muscular Atrophy Type 1 (SMA), which is a genetic condition that causes progressive loss of muscle function. The incurable disease eventually results in the inability to sit, swallow or breathe. The life expectancy for SMA is one to two years.
Emma is currently breathing with the help of a respirator after being deemed palliative.
Saskatchewan quarterback Darian Durant learned of the twins’ fight and wanted to help out after hearing the family would have to quit their jobs and move to Vancouver to take a chance on an experimental treatment.
The twins’ parents Danny and Melissa Surine have decided the babies will take part in a drug trial for a new medication that could be used to slow down, stop or even cure the disease.
The Surine family will have to give up their jobs and move to Vancouver for 14 months.
“Being hurt you have as lot of time on your hands and all you can do is think. I couldn’t contribute on the field so I was just thinking how can I contribute in the community,” Durant said.
Durant was at a fundraiser for the twins on Sunday in Saskatoon at Rock Creek Tap and Grill. People will have the opportunity to watch the game with the quarterback. Organizers auctioned off a chance to golf with Rob Bagg and Weston Dressler.
“It just puts in perspective life and how precious it really is and how you should just cherish it to the fullest,” Durant said.
The fundraiser will begin at 10 a.m. and continue throughout the day.
Game Day with Wray will broadcast live from Rock Creek in Stonebridge. Pre-game coverage starts at 10 a.m.
Donations for the twins can also be made online at gofundme.com/ypx7yv4